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Psychosocial risks among Iranian parents of children with cancer
Abstract
Method: Using the Psychosocial Assessment Tool- Revised (PAT-R) for parents of children with cancer, 200 parents of these children in two hospitals supervised by Kerman University of Medical Sciences was assessed.
Result: The results indicated that parents who did not plan for future pregnancy, had more sibling problems (mean=0.18, p=0.00, SD=0.13) compared to those who planned for future pregnancy. Also more children parents have, the higher "child problems" (mean=0.42, p=0.04, SD=0.20). The means of categories of “child problems” (mean= 0.33, p=0.01, SD=0.17) and “family problems” (mean=0.25, p=0.001, SD=0.14) were lower among parents who had own car compared to others. The means of categories of "family problems" (mean=0.17, p=0.00, SD=0.11) and "parents' stress reactions" (mean=1.11, p=0.00, SD=0.64) were lower among parents who did not have financial difficulties compared to others.
Conclusion: The results of following study revealed that there were association between socio-demographic data such as planning for pregnancy, number on children, financial difficulties and psychosocial risks. More study is needed to elucidate the Iranian parents’ experience of having children with cancer.
References
Masa’Deh, R., Collier, J., & Hall, C. Parental stress when caring for a child with cancer in Jordan: a cross-sectional survey. Health and Quality of Life Outcomes. 2012, 10, 88-89. doi:10.1186/1477-7525-10-88.
The Truth 365. The documentary and social media campaign that gives a voice to all children with all types of cancer, cancer facts. 2014. Available from: www.thetruth365.org/cancer-facts.
American cancer society. Children Diagnosed With Cancer: Financial and Insurance. 2014. Available from: Issues. http://www.cancer.org.
Phipps, S., Long, A., Hudson, M., & Rai, S. H. N. Symptoms of post-traumatic stress in children with cancer and their parents: Effects of informant and time from diagnosis. Pediatric Blood Cancer. 2005, 45(7), 952–959. doi: 10.1002/pbc.20373.
Kazak, A. E., Brier, M., Alderfer, M., Reilly, A., Parker, S. F., Rogerwick, S.,…Barakat, L. P. Review Screening for Psychosocial Risk in Pediatric Cancer. Pediatric Blood & Cancer. 2012, 59, 822–827. doi: 10.1002/pbc.24166.
American cancer society. What are the key statistics for childhood cancer?. 2014. Available from: www.cancer.org/cancer/cancerinchildren/.../cancer-in-children-key-statistics.
Brown, R.T., Wiener, L., Kupst, M.J., Brennan, T., Behrman, R., Compas, B. E.,…Phipps, S. Single Parents of Children with Chronic Illness: An Understudied Phenomenon. Journal of pediatric psychology. 2008, 33(4), 408–421. doi:10.1093/jpepsy/jsm079.
Syse, A., Loge, J. H., & Lyngstad, T. H. Does Childhood Cancer Affect Parental Divorce Rates? A Population-Based Study. Journal of Clinical Oncology. 2010, 28 (5), 872- 877. doi: 10.1200/JCO.2009.24.0556.
Davis, C., & Mantler, J. The Consequences of Financial Stress for Individuals, Families, and Society. Centre for Research on Stress, Coping, and Well-being, Department of Psychology Carleton University. 2004. Available from: http://httpserver.carleton.ca/~jmantler/pdfs/financial%20distress%20DSI.pdf.
Sandstrom, H., & Huerta, S. The Negative Effects of Instability on Child Development: A Research Synthesis, Low-Income Working Families. The Urban Institute. 2013. Available from: http://www.urban.org/UploadedPDF/412899-The-Negative-Effects-of-Instability-on-Child-Development.pdf.
Klassen, A., Raina, P., Reineking, S., Dix, D., Pritchard, S., & O'Donnell, M. Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being. Support Care in Cancer. 2007, 15(7):807–818. doi: 10.1007/s00520-007-0243-x.
Iranian Student's News Agency. The cost of cancer treatment. 2014. Available from: www.isna.ir.
World Health Organization. Countries, Iran (Islamic Republic of). 2013. Available from: The global health observatory at www.who.int/gho.
Ghavamzadeh, A., & Bahar, B. Communication with the cancer patients in Iran, information and truth. Annals New York Academy of Sciences. 1997, 261-5. doi: 10.1111/j.1749-6632.1997.tb48089.x.
McCarthy, C. M., Clarke, N. E., Vance, A., Ashley, D. M., Heath, J. A., & Anderson, V. A. Measuring Psychosocial Risk in Families Caring for a Child with Cancer: The Psychosocial Assessment Tool (PAT2.0). Pediatric Blood & Cancer. 2009, 53(1), 78–83. doi: 10.1002/pbc.22007.
Alderfer, M.A., Mougianis, I., Barakat, L., Beele, D., DiTaranto, S., Hwang, W. T.,…Kazak, A. E. Family Psychosocial Risk, Distress, and Service Utilization in Pediatric Cancer. Cancer. 2009, 15, 115 (18), 4339-49. doi: 10.1002/cncr.24587.
Kazak, A. E., Cant, M. C., Jensen, M. M., McSherry, M., Rourke, M. T., Hwang, W. T.,…Lange, B. J. Identifying Psychosocial Risk Indicative of Subsequent Resource Use in Newly Diagnosed Pediatric Oncology Patients. Journal of Clinical Oncology. 2003, 21(17), 3220-3225. doi: 10.1200/JCO.2003.12.156.
Kazak, A. E., Prusak, A., McSherry, M., Simms, S., Beele, D., Rourke, M. T.,…Lange, B. The Psychosocial Assessment Tool (PAT): Pilot data on a brief screening instrument for identifying high risk families in pediatric oncology. Family Systems & Health. 2001, 19(3), 303-317. doi: 10.1037/h0089454.
Kazak, A. E., Barakat, L. P., Hwang, W. T., Ditaranto, S., Biros, D., Beele, D.,…Reilly, A. Association of psychosocial risk screening in pediatric cancer with psychosocial services provide. Psychooncology. 2011, 20 (7), 715–723. doi: 10.1002/pon.1972.
Pai, A. L. H., Patino-Fernandez, A. M., Mcsherry, M., Beele, D., Alderfer, M. A.,…Kazak, A. E. The Psychosocial Assessment Tool (PAT2.0): Psychometric Properties of a Screener for Psychosocial Distress in Families of Children Newly Diagnosed with Cancer. Journal of Pediatric Psychology. 2008, 33(1), 50-62. doi: 10.1093/jpepsy/jsm053.
Kazak, A. E. Pediatric Psychosocial Preventative Health Model (PPPHM): research, practice and collaboration in pediatric family systems medicine. Families Systems & Health. 2006, 24 (4), 381–395. doi: http://dx.doi.org/10.1037/1091-7527.24.4.381.
Nolbris, M, Enskar, K., & Hellstrom, A. Experience of siblings of children treated for cancer. Europen Journal of Oncology Nursing. 2007, 11, 106–112. doi: 10.1016/j.ejon.2006.10.002.
Miedema, B. B., Easley, J., Fortin, P., Hamilton, R., & Mathews, M. The economic impact on families when a child is diagnosed with cancer. Current Oncology. 2008,15(4), 173–178. doi: http://dx.doi.org/10.3747/co.v15i4.260 .
Walter, J. Coping with Childhood Leukemia and Lymphoma. Leukemia and lymphoma society, fighting blood cancer. 2012. Available from: www.LLS.org.
Cohen, P. N. Recession and Divorce in the United States: Economic Conditions and the Odds of Divorce, 2008–2010. College Park: Maryland Population Research Center. 2012. Available from: http://papers.ccpr.ucla.edu/papers/PWP-MPRC-2012-008/PWP-MPRC-2012-008.pdf.
Laird, J., Lew, S., Debell, M., & Chapman, C. Dropout Rates in the United States: 2002, 2003. Washington, DC: US Department of Education, National Center for Education Statistics. 2006. Available from:http://www.cpec.ca.gov/CompleteReports/ExternalDocuments/Dropout_Rates_US_2002_2003.pdf
Carlson, M., & Corcoran, M. Family Structure and Children’s Behavioral and Cognitive Outcomes. Journal of Marriage and family.2001, 63(3), 779–792. Available from: http://web.stanford.edu/group/scspi/_media/pdf/Reference%20Media/Carlson%20and%20Corcoran_2001_Children.pdf.
Booth, A. L., & Kee, H. J. Birth Order Matters: The Effect of Family Size and Birth Order on Educational Attainment. Institute for the Study of Labor. 2005. Available from: http://ftp.iza.org/dp1713.pdf.
Casey, L. Listening to Troubled Families: A report by Louise Casey CB. Department for Communities and Local Government. 2012. Available from: www.communities.gov.uk.
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