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Perception of illness, Body image and Quality of life among patients with Vitiligo

K Shanthi, Anandha Ruby Jacob, Amalorpavamary Lucas, Susanne A Pulimood

Abstract


Skin is the most visible and largest organ of the human body. It plays a vital role in mode of communications through expressions. “Healthy skin is a reflection of overall wellness” this is the reason most youngsters spend more time in front of the mirror. Vitiligo is a skin disorder characterized by patches of de-pigmented skin and the estimated global prevalence is between 0.5% and 2%. Vitiligo significantly affects patient’s perception, body image and their Quality of life (QoL). It is cosmetically and psychologically devastating and affects anyone irrespective of age, gender, race, skin type or ethnicity. Aim: This study was conducted with an aim to assess the Perception of illness, Body image and Quality of life (QoL) among patients with Vitiligo and its association with selected demographic and clinical variables. Methods: A descriptive cross-sectional design was employed to recruit participants. A total of hundred participants with the diagnosis of Vitiligo attending dermatology outpatient department from a tertiary care center were selected using consecutive sampling technique. The data collection instruments included Brief Illness Perception Questionnaire, Modified Body Image Scale, and Vitiligo Specific Quality of Life Instrument. Results: Male (45%) and female (55%) participated in the study. The mean age groups of male and female participants were 44.17 ± 14.78 and 38.36 ± 13.89 respectively. Majority (64%) of the participants perception of illness were moderately affected, 42% of the participants had moderate body image disturbance and the QoL was moderately impaired in 34% and severely impaired in 33% of the participants. There was a statistically significant positive correlation between perception of illness and body image (r = 0.441; p = 0.001), perception of illness and QoL (r = 0.518; p = 0.001) and body image and QoL (r = 0.666; p = 0.001) of the participants. There was a significant association between Perception of illness with type of vitiligo, body image with location of lesions and QoL with duration of illness and Vitiligo Area Severity Index Score (VASI). Conclusion: Patients with Vitiligo had body image disturbance and perception of illness which was directly proportional to QoL impairment. Hence, it is vital to address the psychological aspect of patients with Vitiligo. The health care providers should be geared to improve the QoL among patients with Vitiligo.


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References


Almomani N, Abdulmajeed I, Ur Rahman S, Alakkam A. Quality of Life and Affective Health of Patients with Vitiligo. J Sleep Disord Ther 4: 190. doi: 10.4172/2167–0277.1000190 Page 2 of 8 J Sleep Disord Ther ISSN: 2167-0277 JSDT, An open access Volume 4• Issue 2• 1000190. Type of Family Alone. 2015; 14 (6):3.

Parsad D, Dogra S, Kanwar AJ. Quality of life in patients with vitiligo. Health and quality of life outcomes. 2003 (1): 1–3.

Vekataraman L. Vitiligo is a skin disease worthy of attention-World-vitiligo day [Internet]. [Cited 2022 March 31]. Available from: https://www.medindia.net /2018/6/23

Hamzavi I, Jain H, McLean D, Shapiro J, Zeng H, Lui H. Parametric modeling of narrowband UV-B phototherapy for vitiligo using a novel quantitative tool: the Vitiligo Area Scoring Index. Archives of Dermatology. 2004: 140 (6): 677–83.

Broadbent E, Petrie KJ, Main J, Weinman J. The brief illness perception questionnaire. Journal of psychosomatic research. 2006; 60 (6): 631–7.

Hopwood P, Fletcher I, Lee A, Al Ghazal S. A body image scale for use with cancer patients. European journal of cancer. 2001 1; 37 (2): 189–97.

Lilly E, Lu PD, Borovicka JH, Victorson D, Kwasny MJ, West DP, Kundu RV. Development and validation of a vitiligo-specific quality-of-life instrument (VitiQoL). Journal of the American Academy of Dermatology. 2013 1; 69 (1): e11–8.

Vora RV, Patel BB, Chaudhary AH, Mehta MJ, Pilani AP. A clinical study of vitiligo in a rural set up of Gujarat. Indian journal of community medicine: official publication of Indian Association of Preventive & Social Medicine. 2014; 39 (3): 143.

Topal IO, Duman H, Goncu OE, Durmuscan M, Gungor S, Ulkumen PK. Knowledge, beliefs, and perceptions of Turkish vitiligo patients regarding their condition. Anais brasileiros de dermatologia. 2016; 91: 770–5.

Shah H, Mehta A, Astik B. Clinical and sociodemographic study of vitiligo. Indian J Dermatol Venereol Leprol. 2008; 74: 701

Dave S, Thappa DM, Souza MD. Clinical predictors of outcome in vitiligo. Indian Journal of Dermatology Venereology and Leprology. 2002 1; 68 (6): 323–5.

Saeed AH. Beliefs, knowledge, and perceptions of Najrani vitiligo patients regarding their illness. International Journal of Medical Science and Public Health. 2020; 9 (3).

Vernwal D, Sharma DK, Agrawal S, Sharma D, Sushil CS, Vijayvergia DK. A Study to Know Correlation among De-Pigmentation of Body Areas and Sex of Vitiligo Patients with their Self Esteem and Impact of Vitiligo on Quality of Life.

Hedayat K, Karbakhsh M, Ghiasi M, Goodarzi A, Fakour Y, Akbari Z, Ghayoumi A, Ghandi N. Quality of life in patients with vitiligo: a cross-sectional study based on Vitiligo Quality of Life index (VitiQoL). Health and quality of life outcomes. 2016 14 (1): 1–9.


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